Tag: christmas

Someone left a present each for me and the kids on our doorstep on Christmas morning. It was very thoughtful but I’d really like to be able to thank the generous soul. Thank you very much. Please come forward, I’d feel really good to be able to thank you.

Julie had been wanting to try making vegan cupcakes but hadn’t gotten around to it, mainly because she was waiting on me to buy the ingredients. I took a stab at the cake while they were in their homeschooling enrichment classes today and this is quite good. I doubled the recipe and bought frosting off the shelf. I made this into cupcakes, paper lined and baked each pan of 12 at 350 degrees for 23 minutes. Since we are a mile above sea level you may need to adjust the time. Ingredients 1 1/2 cups all-purpose flour (I added a few extra TBS to thicken the mixture up) 1 cup sugar (I used evaporated cane sugar) 1/4 cup cocoa powder 1 teaspoon baking soda 1/2 teaspoon salt 1/3 cup vegetable oil 1 teaspoon vanilla extract 1 teaspoon distilled white vinegar 1 cup water Directions Preheat oven to 350 degrees F (175 degrees C). Lightly grease one 9×5 inch loaf pan. Sift together the flour, sugar, cocoa, baking soda and salt. Add the oil, vanilla, vinegar and water. Mix together until smooth. Pour into prepared pan and bake at 350 degrees F (175 degrees C) for 45 minutes. Remove from oven(read the rest)

We do lots of different tradition’s for Christmas and here are them. The most common one is us opening one present on Christmas Eve but on Christmas Eve or Christmas day we have Chinese food at a restaurant and nobody does that in the US. this year we have a plan and it is We open our present’s with our family. Then, we are going to my mom’s friend house. Finally, we are going home and having Chinese food. sorry for this small blog and I hope you all enjoy

This past weekend I brought the 4 kids plus their father who just drove out here from Boston to the Breakfast with Santa put on by Rachel’s Special needs school (Fletcher Miller in Lakewood, Colorado). It was a great time, huge value for the money and a nice, inclusive environment for kids with special needs and their families. Here are some pictures I took of my kiddos and a few of people that love Rachel (Hi Kristin and Becca).  

I really love christmas it is just because it is a time to have fun with relatives, and presents. Here are 5 things I want for christmas and why. 1. a Lava Lamp. I love lava lamps because it brings colors and because they are pretty. 2. A acrylic moon it is because I have an acrylic sun and I think that it would be cool to have the sun and moon. 3.Paint and canvas.The reason I want this for christmas is because I love art because it is very creative . 4.Sticker art . I love sticker art it is easy and fun. 5.More adult chickens!!! I love animals and we have 5 chickens and I want to expand it so we can get 5 more!

London's Christmas Lego Ship

Check out London’s Christmas ship!!!  London was doing some lego play this morning as we have a big trip planned to the Denver Museum of Nature & Science later today. Before we go we are going to the Bake Sale at Rachel’s school. Leave a comment and let know London what you think!

It’s a different kind of Christmas this year.  There are 5 stockings hung, the house is absent one husband and has gained one puppy.  Rachel’s health is continuing to decline on a continual basis and my other three kids are aware of some of the harsh realities of our life, more than last year.  Rachel’s speech is becoming harder to understand and she is mostly in a wheelchair or on the floor crawling but I have her walk to the bathroom and to her wheelchair on the front porch.  Often when she is in an angry mood she gets upset easily and screams like a toddler when her needs aren’t immediately met, other times she will sit content for hours listening to her favorite shows and movies. Her decline has been hard for me because I have always liked to get out of the house and DO stuff.  We’ve spent more time at home this past year than we have ever done before and I find it depressing.  I’ve avoided the thought of obtaining a wheelchair van because I’m able to lift her as she still has some lower body strength (although it is considerably weaker since this time last(read the rest)

Rachel has been suffering from a nasty rash.  It started off slow around her shoulders and it has progressed down her body, leaving a whiteness in the pigmentation of her skin.  I’m concerned that it is an autoimmune rash and actually brought her to the doctor on Tuesday for an exam and blood work.  I asked the doctor to test her for Lupus markers and hopefully we’ll know in the next couple of days.  The rash is nasty and seemingly unrelated to medication or Batten Disease.  She is quite uncomfortable because its currently in her inner and outer thigh area so hopefully that will clear up or move soon. I’m also waiting on a Dermatology referral to Boston Medical Center.   Good News!  We are (me and the 4 kids) headed to Colorado for a quick trip to see the most AMAZING friends  and family in Kansas City and to cross The Flying W Christmas Round-Up from our Bucket List. Rachel has loved the Flying W since she was an infant so this should be a truly remarkable experience for her and for the other kids.  They are STOKED about going to the 8pm showing so they get to stay(read the rest)

is drawing to a close and I’m up by myself tonight (a special shout out to our cat, Krabs, who is sitting next to me while I type). Christmas was good, we went to my Mom’s for Christmas eve and raced home to put out the reindeer dust, milk, cookies and carrots. Santa brought Rachel the “babydoll” stuff she asked for, PIXOS for Julie, an army tank for London and the Buzz Lightyear “yard” that Boston has been talking about non stop. It was a really nice day and the kids have finally calmed down from all of the excitement. Today I brought up our Geotrax stuff that has been sitting in the basemenrt for at least a year and the kids played with it for HOURS. For whatever reason we don’t have a complete remote control train for the set (either the RC or the train but not a matched pair) and I looked everywhere. The kids manually pushed the trains for hours and had such a good time. I was going to play with the wii fit tonight but I didn’t have the heart to put away their train stuff. They are such good kids I am absolutely(read the rest)

1 2