We recently, quickly updated the New England Chapter of the Batten Disease Support & Research Association from a Drupal based website to WordPress.
My oldest, Rachel, had Juvenile Batten Disease (CLN3) What is Batten Disease? Batten Disease is named after the British pediatrician who first described it in 1903. Also known as Spielmeyer-Vogt-Sjogren-Batten Disease, it is the most common form of a group of disorders called Neuronal Ceroid Lipofuscinoses (or NCLs). Although Batten Disease is usually regarded as the juvenile form of NCL, it has now become the term to encompass all forms of NCL.