Last week I decided (after some gentle nudging from a few people that I love as much as the sun loves the moon) to hold a second road race for Batten Disease Research. The third Team Rachel Race 4 A Cure is being held on May 18th (which happens to be my Rachel’s 14th birthday) in Hull, Mass. We are looking for everyone to chip in either as a walker, runner, volunteer, sponsor or raffle donor.
Please get in touch with me if you can help at firstname.lastname@example.org – click here for more information on the road race!
We’ve raised a lot of money and donated it all to research and would love to see several thousands more! I know this is a rare disease and it seems hopeless but research into Batten Disease also helps other brain / neurological diseases like Alzheimers, Parkinsons, Multiple Sclerosis, Huntingtons and so many other rarer diseases which you hopefully never have to learn about.
So excited! Road Race meetings are being held every Wednesday night at my house 8pm starting Wed, March 26th! <3