Tag: road race

[dropcap] THE ROAD RACE  IS BACK!!! [/dropcap]

2014-03-14 17.09.45Last week I decided (after some gentle nudging from a few people that I love as much as the sun loves the moon) to hold a second road race for Batten Disease Research. The third Team Rachel Race 4 A Cure is being held on May 18th (which happens to be my Rachel’s 14th birthday) in Hull, Mass. We are looking for everyone to chip in either as a walker, runner, volunteer, sponsor or raffle donor.

Please get in touch with me if you can help at team@teamrachel.com – click here for more information on the road race!

We’ve raised a lot of money and donated it all to research and would love to see several thousands more!  I know this is a rare disease and it seems hopeless but research into Batten Disease also helps other brain / neurological diseases like Alzheimers, Parkinsons, Multiple Sclerosis, Huntingtons and so many other rarer diseases which you hopefully never have to learn about.

So excited! Road Race meetings are being held every Wednesday night at my house 8pm starting Wed, March  26th!  <3

And a conversation about the road race and her Halloween costume!

We have sent in the paperwork to have the 2nd Annual Team Rachel Road Race on October 28th, 2012 with a 9am race start. Cannot wait!!!!!!!!!! I promised myself to send the letter in for approval before her birthday and that is coming up soon (May 18th).

Click here to RSVP to the Road Race on Facebook

Picture: Rachel with a starfish given to her by another blind person that she and her Granny ran into at the end of Hull, MA