Rachel has been very difficult the past couple of days thanks to Batten Disease. Constantly yelling, needing, demanding you come to her *NOW* and yesterday and Friday evening she was requesting to go to the bathroom several times. Usually she only goes to the bathroom about 4 times a day (sometimes less). Her walking is terrible and I am literally holding her up to make it the ten steps to the toilet.
I’m at the point where I’m ready for her to start using her absorbent briefs. I think that would be safer for her… and apparently my back. There was no big event yesterday where I “pulled something” – but I woke up in excruciating pain that is not going away.
Rachel was so upset last night. She is still asleep now. Friday and Saturday night she didn’t go to bed until midnight. Saturday night she had her meds a 6:15. I need to get some rescue medication for nights when she is extremely emotional, sad, angry, ADD, and all over the place. :/