Back to school is exhausting, for me (and maybe not all parents with kids like mine) because of the nature of having a child with a degenerative disease. Talking about loss of abilities that came about during the summer… knowing this is one less school year I will have with her.
Meeting your child’s new teacher for the first time today, who seems really nice and watching her not being able to understand your child. Knowing you won’t be there while your kid tries to get the words out. Hoping they’ll call you to translate… Near tears because they won’t text you with pictures and questions they way the teacher last year did.
Oh how I wish I could be one of you, feeling sad when you start taking your kid on college tours, taking them to get their driver’s license, sending them in a limo to prom. Wishing they would stop growing up so fast. Growing up is what you WANT. Trust me.
At registration (TODAY) I learned Rachel’s school day now starts much later than last year and her shorter day was moved from Thursday to Tuesdays. Let’s not talk about me sobbing at registration when I met her new teacher because I have no idea how I am going to get Rachel on the bus and get my kids to and from school on Tuesdays mornings now that they have the same start times and are 30 minutes away.
I also learned (TODAY) that they changed their school uniform colors. Fuck school uniforms. She is wearing tie dyes and her lu la roe leggings (because they make diaper changes easy), I’m not coughing up the $$ for new uniforms.
I also learned (TODAY) that Rachel can’t wear red or blue because they are gang colors??!? WTF!!!!!!!!!!!!!
I don’t GAF!!!!!!!!
I also learned (TODAY) that she can’t wear her sunglasses (which she literally sleeps in because she gets headaches without them) for safety reasons?
Yes, my blind daughter, who can’t hold a mother fucking soda with a straw to her mouth, without her wrists shaking uncontrollably, is a terrorist. Just waiting for her moment to sneak an explosive into school. Did I mention she LOVES school? Aside from Granny’s house, school is her favorite place. <3
Why do school rules have to be so fucking homogenized?
Photo: I took her to get a Dr. Pepper and (vegan) French Fries. That is the soda she can’t hold without shaking. And that is the smile on her face from meeting her new teacher.
I’m not sure who the bigger asshole is… today. Public school rules or Batten Disease.